Father’s Day has come and gone…

Father’s Day has been hard for me for some time. My Dad , an adoptee, eliminated me from his life and his heart. It’s been 10 years since I’ve seen him, and he just stopped loving me. No explanation, nothing.

He abandoned me at age 10 when he left my mom. We had occasional visits, but he liked to take my brother and me to the movies. I truly feel that he didn’t have to interact with us on those visits.

He also wrote off my children, except one. My lost daughter, that he wouldn’t allow me to keep. He’s in her life, and though that hurts , I’m happy for them. I’m sad for her siblings. He’s missing out on two amazing people.

Dad was always my hero. I completely adored him. I still love him with all of my heart. It’s taken years to accept he wants no part of me. The hardest part is I don’t have a reason. He just stopped loving me. How do people do that?

He’s great friends with my ex husband and his wife. That was a difficult thing to swallow. Being so easily replaced. Not knowing why hurt and confused me. I’ll never know.

I wish him Happy Father’s Day every year on FB. We aren’t friends, so I doubt he sees it. I don’t think he ever wanted children and this was his way out.

I wish he’d explain it to me. Understanding makes things easier to accept. It’s the wondering and going over each event that hurts. If I knew why , maybe I could fix it. Wishful thinking at its best.

I love you Dad. Always have and always will. I hope you had a wonderful day. I didn’t call or text because I know that is your wishes.

Life is short. Forgive often and love one another. I’ll always love you.

I’m not Adopted, But I’m Listening to them…

The short version of my story: I lost my daughter 32 years ago against my will. My parents decided it was best. My parents are both Adopted, but I didn’t think of the connection until a few years ago. All of my 3 children are full siblings and I married my lost daughter’s Father 2 years later and had my daughter and my son. We have since divorced. She has refused reunion with me , but has a wonderful relationship with her sister. She is married and just had her fifth child.

No filter here. I lost it the day that precious boy was born. I was heartbroken for me, ecstatic for her, and a complete disaster. Not one of my proudest days. All I could think about was my loss. Every time she has a baby, it felt like I lost her again. PTSD isn’t forgiving to oneself .

I was once again missing them and her and felt I would drown in the powerlessness. After my breakdown, I thought long and hard and kept reading from the Amazing Adoptees. I ended up being so ashamed of myself.

I had my epiphany suddenly! I felt entitled!! I was no better than the adoptive parents that believe they are owed a child. She doesn’t owe me anything! None of this was her choice and promises not kept weren’t made by her. This was huge.

Am I ” over it”? NO. I’m only now just beginning to understand. I’ll never be over her. She’s my daughter and I’ll love her until my last breath. But, she has no obligation to me. None.

I was stuck at 18 for so long , that the pain paralyzed me. If I didn’t clutch her memory, I felt empty. The only moments I had with her lasted less than 24 hours.

My goal now is to enjoy how happy she is. Even though I’ll never meet her, she has a wonderful life. She’s the happy Adoptee. And, would I want her to be unhappy? Never!

I thought about some of our messages over the years and I owe her the biggest apology. In my dream scenario, she’s missing me. She’s not. Why would she ? I’m a stranger. I’m the mother of her sister and that is all.

I’m making tiny baby steps with the support of my Sisters in Adoptionland. I’m growing, ever so slowly, but , it’s a start. Instead of living in the past, I am looking toward the future. The pain isn’t a constant torture. I think of her daily and pray for her and her family.

Adoptees taught me so many things about myself and her. I’m forever grateful for our Sisterhood. ❤️. Wish me luck 💕

I hope that maybe one day, I’ll shine more than I break. One day at a time is the only way to navigate this for my journey.

Triggers and Dissociation….

I find this is my pattern now. It’s somewhat safe, and doesn’t bother those around me. Feeling, remembering, reliving, and all that goes with adoption and childhood trauma is exhausting for those that are in your life. Being numb as possible lightens the load of acting like ” I’m Fine”.

What can a person say to you when you’re crumbling, trying to breathe and hoping lightening will strike you? I’m sorry. It puts you and them in a helpless situation. Everyone knows my story, probably far too well. And, I’ve found that the way my life ended up causes them anxiety. I hate that. Their story may have a much greater ending than mine.

They will have a reunion, meet their adult child and get to hold them, smell them and gaze at their hands. Sounds strange? Can you imagine carrying your baby and having your parents tell you that she’s not welcome? That you shamed them. We want to see them with every breath we take.

Triggers such as Birthdays, new grand babies being born and marriage cause many of us to crash. All the things we thought we’d be part of we aren’t. Though 96% of Adoptees do want contact , there are the 4%. I’m one of them.

You can get caught in woulda, coulda, shoulda for decades. But, the hard truth is you can’t get the time back. You must mourn the baby you lost and for many, do the work for reunion. Even if you are totally prepared, there is no guarantee .

They Adult Adoptee made no promises to us. They don’t owe us anything. We can hope for kindness and a relationship, but don’t hold your breath for that balloon airport meeting.

They often go back and forth. I understand why they do. We abandoned them, even if we didn’t choose to. It’s as simple as that. Why should they trust us? We will probably just leave again, right?

I am stuck , as my therapist says, at the time I lost her. The pain, grief, and powerlessness is profound. Yet, if she hadn’t been born, the world wouldn’t be as wonderful for her and her family. She’s an amazing mommy. I’m so proud of her. I saw just that picture of her new son and knew that whatever I’ve gone through and will in the future has meaning.

My three children are my legacy. I suppose that caring for the critically ill for more than 25 years is a legacy, too. I did something that mattered, and it has to be enough. I lay no claim to their success’s. They have done so well on their own.

I’ve disconnected from this life. I feel far away. It’s safer that way. Just mark the days and expect Nothing. No disappointment can get me anymore if you have no hope.

I’ll continue to help other Moms and children. I will be here for my Adoptee Sisters , too. Adoptionland is huge and I’m an old pro at this. I’ll be past 70 when this new baby grows up. If I’m still here. No matter. I honestly think I’ve done my part.

Others expectations of me are exhausting and I’m too sick for all of this. It’s dramatically impacted my health. Autoimmune diseases are very high among those impacted by adoption. The body can only take so much pain.

I pray for those struggling and it breaks my heart every time I hear we lost another Sister. Adoptees are 4 times more likely to commit Suicide than those not adopted according to the American Pediatric Society.

I don’t think I’ll see a change to Adoption in my lifetime. I pray it changes and only happens when there is NO other way. Guardianship is a way to help children without them losing their identity and history. No more fake birth certificates that say the Adopters gave birth. No more sealed records for adults that want to know their origin.

Sweet dreams tonight. I’ll be up wishing I could change so many things. I’m over 30 years into this and my brain still tries to find a way out of this continuous nightmare. It’s futile. As my beloved Nana would tell me, ” What is, is”.

Uncomfortably Numb….

Day after day I sit here and know that I’m meaningless. I’ve isolated myself to the point of not even existing. My heart beats and air moves through my lungs, but , nothing more. Feeling anything seems impossible. I’m not mad, sad, or anything.

If this is acceptance, I’m there. Zero hopes or dreams. This is my lot in life. I’m responsible for all of it. I Own it. If only I hadn’t….. everything.

I try not to count days, count on people, or count my losses. I try not to think and it’s becoming easier. I’m slowly fading away. My family won’t notice. Family. Yeah. Thick or think, that’s the idea. Right? I’m disposable. That’s a fact. I’ve been replaced easily and that finally gives me some comfort that they will do so when I’m gone.

Post a picture of my dog. She’s “fine”. It’s so much easier to think someone is okay than to climb into the mud and pull them out. It’s no ones responsibility but my own.

I’ve lost too much to ever be alright. As Adoptees put it , ” She’s too damaged “. They are really right. You can’t change time.

The future holds nothing but a calendar, a very empty one. When you truly believe you’re worthless, you understand why people forget you. It’s logical. No offense taken. One can only expect so much of anyone.

I wish everyone a wonderful life. They deserve it. Fait has other plans for me. I do have a legacy. I had 3 wonderful children that are amazing adults and their achievements and success are part of me, even if they wish it not so.

When I’m gone , they will have beautiful long healthy happy lives. What more could a mother want? Remember my name. I existed once.

No worries. Off to trauma therapy.

It wasn’t supposed to turn out this way…

My daughter had her beautiful son last week. He has red hair and I’m sure his daddy’s amazing blue eyes. I’ll never meet him, my daughter, or her 4 other children. I’m thrilled for her. I’m broken inside. Another loss to add to the mountain that is sitting on me.

I thought she’d meet me once. Just that one time. It was not to be. Accepting this is a lot like death. My death. I’m struggling so much. I’m trying to act brave , but , to those that do love me I’m not fooling anyone.

My heart hurts. It literally hurts. We will see what the echo shows. Honestly, I don’t care. I’ve been extremely ill as has my elderly mother. I’m keeping busy but that’s my MO. Push it all away and it will work out. It won’t. She never wants to meet me ever.

Time isn’t healing the wound of losing your first child. She’s alive and happy and raising her family and I’m so grateful for that. I need to accept the facts my brain knows but my heart is too broken to accept.

The stress of this is literally killing me and it won’t be much of a loss. I’m obviously not needed by anyone. Doctors and tests clutter my week and I simply exist. I just made homemade soup. “I’m fine”.

Tell her I loved her since before she was born if I’m not here. Tell her I’m sorry I believed I wasn’t enough. Tell her I’ve thought of a million ways to have fought them better now. Hug her just once for me. Tell her my name.

Raw, viewer beware….

Please don’t expect this to have ANY type of organization to it.

I’m falling apart and each time it happens I fall further away. I’m gutted, in agony, numb, and so Angry! I’m so devastated and broken that no matter how hard I try to fix me and things , I fail. I have begged, pleaded, prayed, wished, hoped, and everything else under this sun. I’m Furious that I cannot either let go completely or fix it.

Each loss multiples my grief by a million. I’m in the deepest, darkest cave in the ocean and I’m not wanting to follow the bubbles up. Its cold and dark here, and that is safe. No one can get to me. I’ve done my therapy weekly. Trauma is a bitch that sinks it’s fangs into you and won’t let go.

My lost daughter just had her fifth baby yesterday. It’s a wonderful, beautiful thing. He’s gorgeous and will be loved so much by everyone.

It triggers losing her again. The flashbacks of 32 years ago come and crash on me , smothering any work I’ve accomplished. I’ll never meet her or them. She’s made this clear and I accept it the best I can.

I’m so fucking mad at my parents, her parents and her dad , my ex-husband, the father of all three of my children. I’ve tried to never be angry at him. I was for far too long.

I feel abandoned by my ” wonderful ” parents, Adoptees themselves. I feel abandoned by my raised daughter that simply says ” You signed the papers “. No love or understanding is passed out by her. Instead, she posted a thing about toolbox’s and both daughters discussed it ” me”.

J, you could have stopped all of this in the beginning. You could have loved me and her enough to make this not happen. You Chose not to. Your wife found her first and filled her head with lies. Your wife introduced her to our other daughter. That was never her right or the right thing to do. Btw, your other children think you’re a jerk.

I have kept silent on millions of things , praying that to just go forward would be best. I protected everyone that was complicit, trying to be the happy, evolved mom.

No one was there except me. Your wife , mother and yourself had ZERO right to tell my story. You don’t even know it. I waited for letters and pictures to come you didn’t bother to ever read or look at.

Her parents Promised they would give her everything I sent. They didn’t. Then, they moved and the lawyer claimed she didn’t have the new address after they adopted her sister. I have pictures they sent of both. Yet, you all decided I lied that it was an open adoption. I suppose it’s more convenient than the truth.

I served my 18 year sentence and was waiting for our balloon reunion. You said NO. It was then that I lost all of my coping mechanisms. I never thought that it would end that way. Everyone had promised me I’d meet you.

You tell me that I love you , too much. Do you love your children too much? That doesn’t even make sense. Yes , I sinned and for that , G-d is my judgment, not you. J sinned too , yet you are in reunion with him and his horrible wife. I’m sure you don’t know her secrets. I do. She’s my ex sister in law best friend. I won’t tell. I’m Not like her.

You preach of kindness and forgiveness yet won’t even talk to me once! Hypocrisy. I’m glad you’re the happy Adoptee. I wouldn’t want you sad , ever! Yet, your happiness will never include me. And, you’ve missed out on someone you would have liked. If you only knew how much alike we are.

Your adoptive parents raised a beautiful woman. You are a fantastic mother and wife. I’m proud of you in a million ways. I just cannot understand why you have Zero feelings for me. I’ll never know.

One day, I hope you see your role in this. It never had to be this way. We could have been friends, if you’d given me a chance. You decided that erasing me was for your best. I pray you never regret it. I know far too many that change their mind too late and mourn a grave.

I’m hurting so much there aren’t words to explain. I’ve always wondered how the world kept spinning. I always believed in the fairytale ending. If I just held on, you would see. Your heart would be softenedand it would work out.

I don’t believe that today. Rock bottom leaves you blind. Maybe I’ll believe that again.

Another quilt will be made for the baby I’ll never meet. They will never know I exist. It makes you feel safe.

Congratulations on your beautiful baby boy. His hair is red like yours and mine. He looks like your brother you have never bothered to talk to.

I know I’ll never meet you. And, it’s a tragedy.

New Migraine Treatments- Is there hope?

I have chronic complicated Migraines and they only got extremely worse after my brain aneurysm. I’ve tried every medicine they make. I’m allergic to Triptans and Ergots, so it’s difficult to deal with daily headaches.

I started Botox about 4 years ago and , at first it helped a lot. After a few years it stopped working as well. They still weren’t daily , but often enough that I’m not satisfied with it. Topamax made me stupid.

I have been using Sphenocaths where medication is instilled into to sphenoganglion. They work well, but, I can’t have them forever. It’s not good for your nose.

I’m very excited about this new class of medications that come out in May and July. They actually address the problem, and not the pain. I read a great Harvard articlet today on it.

Reposting.

CGRP: A new era for migraine treatment

POSTED MARCH 05, 2018, 10:30 AM

Carolyn A. Bernstein, MD, FAHS

Contributor

Migraine is a common medical condition, affecting as many as 37 million people in the US. It is considered a systemic illness, not just a headache. Recent research has demonstrated that changes may begin to occur in the brain as long as 24 hours before migraine symptoms begin. Many patients have a severe throbbing headache, often on only one side of the head. Some people are nauseated with vomiting. Many are light sensitive (photophobic) and sound sensitive (phonophobic), and these symptoms can persist after the pain goes away.

There are a variety of migraine subtypes with symptoms that include weakness, numbness, visual changes or loss, vertigo, and difficulty speaking (some patients may appear as if they are having a stroke). The disability resulting from this chronic condition is tremendous, causing missed days of work and loss of ability to join family activities.

It is sometimes possible for people to use an “abortive” medication, which, when taken early, can arrest the migraine process. For many patients, a preventive medication can decrease both the frequency and the severity of the migraines. But to date, many of the medications available for migraines have been developed primarily for other causes: seizures, depression, high blood pressure, and muscle spasms, for example. Researchers have been working for decades to develop a “targeted” preventive therapy specifically for migraine, and now we are finally close to having an exciting new treatment.

What does “targeted” therapy mean?

Calcitonin gene-related peptide (CGRP) is a molecule that is synthesized in neurons (nerve cells in the brain and spinal cord). It has been implicated in different pain processes, including migraine, and functions as a vasodilator — that is, it relaxes blood vessels. Once scientists identified this target molecule, they began trying to develop ways to stop it from being activated at the start of migraines, as a kind of abortive treatment. An agonist makes a molecule work more efficiently, and an antagonist blocks or reduces the molecule’s effect. The CGRP antagonist did work to decrease migraine pain based on certain measures, but there were some serious side effects including liver toxicity.

Back to the drawing board.

Monoclonal antibodies: Cutting-edge translational science

You have likely seen ads for monoclonal antibody (mAb) cancer and autoimmune therapies. There are lots of different types of mAbs, and while some harness a person’s own immune system to block replication of cancer cells, others stop a reaction in the body by binding to a target molecule or receptor and inhibiting it, thus preventing the reaction from continuing. The CGRP mAbs have this effect, and because they have a long duration of action (called a half-life), they can be administered much less frequently than typical migraine medications that are taken daily (with the exception of botulinum toxin, which is injected every 90 days). These new migraine medications are injected under the skin monthly, and have thus far demonstrated a statistically significant decrease in days of migraine. Four different drug companies are developing these new molecules, with two versions already sent to the FDA for approval.

What’s next?

If you think you may be a candidate for this new type of migraine medication, talk with your doctor, and perhaps ask for a consult with a neurologist or headache specialist who can help you understand more about the medication. Monoclonal antibody therapy is expensive, and there will likely be regulations about for whom s the treatments are appropriate. Much more research needs to be done about who is the best candidate for this therapy. But for many migraine patients who have not responded to the standard treatments, or who have had intolerable side effects such as cognitive dysfunction, low blood pressure, weight loss or gain, or other issues, CGRP monoclonal antibodies are safe and well tolerated, and are an exciting new development for migraine therapies.

I truly hope this helps the millions of us that are struggling with migraine disease!